Emergency Planning
Living with PNES often means learning to navigate uncertainty. Seizures can happen unexpectedly, and both individuals and families may find themselves constantly wondering:
“What do we do if it happens again?”
Having an emergency plan in place cannot prevent PNES episodes, but it can help reduce fear, confusion, and panic when they occur. A plan creates a sense of preparation, safety, and communication for everyone involved.
Emergency planning may include:
Knowing when a seizure typically requires medical attention
Having emergency contacts easily available
Creating a plan for work, school, or public outings
Discussing seizure response steps with trusted family
members or friends
Keeping medical information accessible
Identifying safe spaces during an episode
Preparing children or caregivers on what to do during a seizure
For many individuals living with PNES,
one of the hardest parts of the condition
is the unpredictability.
That unpredictability can create anxiety not only
for the person diagnosed, but also for spouses, caregivers, children, coworkers, and loved ones.
An emergency plan can help
everyone feel more grounded
and less overwhelmed during
difficult moments.
It is also important to remember that
not every episode requires emergency medical services.
Families often work with healthcare
providers to better understand:
and how to safely respond during episodes..
when additional medical help
may be needed,
what is typical for the individual,
At the same time, caregivers and loved ones should trust their instincts.
If something feels significantly different, severe, or medically concerning, seeking emergency assistance is always appropriate.
Emergency planning is not about living in fear.
It is about creating safety, communication,
and confidence in the middle of uncertainty.
Preparation cannot remove every challenge,
but it can help families feel less alone
and more equipped to face them together.
Helpful items to include:
Emergency Contacts
Medical Information
Medications & allergies
Seizure response steps
Safe locations
Notes for first responders
Preparation today can bring peace tomorrow.
