Helping Children Understand PNES
When a parent, sibling, or loved one lives with PNES, children often notice more than adults realize. They may see seizures happen, sense fear or stress in the home, or recognize that life feels different — even if no one fully explains why.
Without honest, age-appropriate conversations, children can become confused, frightened, or even blame themselves for what is happening.
Children need to know:
They did not cause the seizures.
Helping children understand PNES begins with reassurance.
PNES is a real medical condition.
Their loved one is not “crazy” or pretending.
It is okay to feel scared, confused, sad, or frustrated.
There are adults helping keep everyone safe.
It is important to explain PNES
in simple language that matches
the child’s age and understanding.
For younger children, it may sound like:
“Sometimes the brain and body get overwhelmed by stress or emotions,
and it can cause seizure-like episodes.
It is not contagious, and it is not your fault.”
Older children and teens may want more detailed explanations and honest conversations about how PNES affects daily life.
Children also benefit from knowing what to do if a seizure happens:
Stay calm.
Get another trusted adult if needed.
Give space if asked.
Know that the episode will pass.
Understand that they are safe too.
At the same time, children should not feel responsible for becoming caregivers themselves. They still need opportunities to play, learn, laugh, socialize, and simply be children.
Living with PNES in the family can create fear and uncertainty, but
it can also teach compassion, resilience, empathy, and emotional understanding when children are supported with honesty and love.
The goal is not to hide every struggle from children.
The goal is to help them feel safe
while walking through it together.
