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Support, education, guidance, and hope
Resources
for individuals living with PNES and the people who love them.
When we first entered the world of PNES, we felt overwhelmed, confused, and alone. These are resources we wish we had from the beginning - places for learning, support, advocacy, and hope.
1. TRUSTED PNES INFORMATION
FND Hope
Education, advocacy, and patient support for Functional Neurological Disorder and PNES.
Cleveland Clinic
Clear medical explanation of PNES symptoms, causes, diagnosis, and treatment.
Epilepsy Foundation
Helpful information for families learning
the difference
between epilepsy
and PNES.
2. MENTAL HEALTH & CRISIS SUPPORT
Veteran's
Crisis Line
24/7 crisis support for veterans and loved ones (phone, text, chat).
Therapist Finder
Search tool for therapists, including trauma-informed and PNES/FND-aware providers.
3. DISABILITY & FINANCIAL RESOURCES
4. LIVING WITH PNES
Living With PNES
Practical guidance for navigating daily life with PNES,
supporting loved ones, managing relationships,
planning for emergencies, and finding hope
in the uncertainty.
5. HELPFUL VIDEOS & SUPPORT GROUPS
An Overview of PNES
PNES Explained
Understanding PNES
6. Seizing Hope — Recommended Reading
A Note from Seizing Hope
The inclusion of a book on this list does not constitute an endorsement of every viewpoint expressed by the author. These resources are provided as educational and inspirational tools that may help individuals and families better understand PNES, caregiving, disability, faith, resilience, and recovery.
Let Them
Author(s): Mel Robbins
In Our Words: Personal Accounts of Living with Non-Epileptic Seizures
Author(s): Glenn A. Wyllie, Ph.D. (Editor)
View From the Floor: Psychogenic
Non-Epileptic Seizures
Author(s): Jillian Lampert
Lowering the Shield: Overcoming
Psychogenic Non-Epileptic Seizures
Author(s): Donna Sinclair
Psychogenic Non-Epileptic
Seizures: A Guide
Author(s): Lorna Myers, Ph.D.
The Gifts of Imperfection
Author(s): Brené Brown
It's Not Supposed to Be This Way
Author(s): Lysa TerKeurst
In Our Own Words: Stories of
Those Living with PNES
Author(s): Lorna Myers, Ph.D. (Editor)
Hope Heals
Author(s): Katherine Wolf and Jay Wolf
Psychogenic Non-Epileptic Seizures Handbook: Practical Tools and Strategies to Understand Triggers, Reduce Episodes, and Improve Daily Life. Author(s): Dr. Olivia Kenneth
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